I can't wait to the see the movie Josh! I think I've watched the preview oh about 10 times and showed a lot of people to. We are very inspired by Alice and hope we can achieve what you have with little Molly.
Your tips have really helped and Molly looks like she is wanting to get up and go and sitting for a couple of seconds on her own. Thanks so much for sharing...it really has helped so much. And bring on the video, can' wait!
Alice has a rare genetic condition called CDKL5 (Mutation in exon 18 - C deletion at position 2503), with a diagnosis of intellectual and physical disability, severe seizures, and digestive dysfunction. This is the story of our journey so far *****
To find out more about Cyclin-Dependent Kinase-Like 5 see: www.cdkl5.com *****
P.S This blog is getting very long! So please check 'Older Posts' at the bottom of the page for Doctors reports and more medical information.
I can't wait to the see the movie Josh! I think I've watched the preview oh about 10 times and showed a lot of people to. We are very inspired by Alice and hope we can achieve what you have with little Molly.
ReplyDeleteYour tips have really helped and Molly looks like she is wanting to get up and go and sitting for a couple of seconds on her own. Thanks so much for sharing...it really has helped so much. And bring on the video, can' wait!
Take care,
Ali & Molly x